A cancer nurse said she has to carry her disabled daughter up four flights of stairs to get to the bathroom while she waits to be added to the council’s housing register.
Janine Powell, from Beaumont Leys, says she has faced a series of delays despite applying for a property with a ground floor bathroom or wet room Leicester City Council six months ago.
The mum-of-five is desperate to move from their three-bedroom town house so that she can care for her nearly two-year-old daughter Amandla more easily, Leicester Live reports.
She said: “I’m trying to get ahead of time and get added to the register now before it just becomes too much.
“I have to carry Amandla up and down four flights of stairs every day. It’s getting harder and harder and as she gets bigger it will be even worse.
“I first applied to the housing register back in August last year. I’ve still not had my application processed. I’ve complained and still got nowhere.
“The likelihood is we’ll be waiting for years for a suitable house. It’s no surprise to hear that when I’ve not even been added to the register six months after I applied.”
Janine and Amandla, are currently sleeping in the living room as they adapted the former lounge after being told there was a long wait for four-bedroom properties.
Amandla has mobility issues and global development delays after she suffered a cardiac arrest as a baby and her brain was starved of oxygen.
Her hospital cot and medical supplies take up most of the makeshift bedroom and the ground floor kitchen diner.
Three of Janine’s older children are living at home.
Her eldest daughter lives in London where she is studying.
Janine cares for Amandla five days a week and pulls in shifts on the oncology ward at Leicester Royal Infirmary at the weekends.
She said: “I have been treated so badly by Leicester City Council it has left me anxious and depressed.
“I understand there have been cuts to all services but as a parent of a child with complex needs I’m disgusted with how myself and other parents are being treated.
“I’ve lived here since 2007 and I don’t want to move for any other reason than it’s not suitable for Amandla here. I can’t care for her properly here.
“I don’t want anything more than somewhere we can live comfortably as a family. It doesn’t need to be an adapted property because Amandla is entitled to a grant for adaptations.
“It just needs to be somewhere I can get her to and from the bathroom and she can have a bedroom that meets her needs.
“The likelihood is she won’t walk so will always need support.”
Amandla cannot be assessed by a council-appointed occupational therapist until she is three – Janine has however arranged for an NHS assessment, which states the family should be rehoused.
The report has been forwarded to the council for consideration.
It reads: “Mum is being proactive and worried about the space that will be required to aid Amandla’s independence and address her care needs as it is becoming increasingly difficult to manage in her current property.”
The assessor said the family need a property with wheelchair access, a wheelchair-friendly ground floor, a ground floor bedroom and bathroom or lift to upstairs, a hoist in the bathroom and bedroom.
It also requires a suitable bathroom “to facilitate a safe environment and reduce the risks to her and her mother”.
A city council spokesperson said: “Last year we had only 40 four-bedroom properties become available to let, and we currently have around 500 families on our housing register who are waiting for one.
“We can confirm we’ve received the occupational health information recently provided by Ms Powell and are in the process of assessing her application.”